About Fragile X
Fragile X Syndrome is the most common known cause of inherited learning disabilities. It can cause a wide range of difficulties with learning, as well as social, language, attentional, emotional, and behavioral problems.
Family Support
We are the UK registered charity providing support and information to families whose children and relatives have fragile X syndrome.
We want families who have been diagnosed to have the opportunity of support from those who know the problems, and to have access to the fulll range of information about the syndrome, including the latest medical, psychological and educational research findings.
With a fuller understanding of the condition parents can be far more constructive and effective in helping their children to reach their full potential.
Information
Our leaflet and booklets give basic and then progressively more detailed information about fragile X. All have been written by or in consultation with the Society's medical, scientific and educational advisors, fragile X researchers and clinicians.
- What is fragile X? (LEAFLET)
- Fragile X: An Introduction (BOOKLET)
- Fragile X: An Introductory Guide to Educational Needs (BOOKLET)
We also offer An Easy Read Guide to Fragile X Syndrome for Parents. More details about this guide can be found on our website.
Our website also has a forum for parents, and a Kids Zone
Address:
Rood End House, 6 Stortford Road, Great Dunmow, CM6 1DA